JOHNLORD;PUBLICATIONS

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Publication Areas

*new items posted

Power / Empowerment /Partnerships / Advocacy

New Paradigm Values / Principles / Approaches

Independent Living Movement

* Relationships and Social Networks

Person-directed Planning, Support and Individualized Funding

Other Related Areas (social innovation, evaluation, homes, etc)

Power / Empowerment / Partnerships / Advocacy
The Process of Empowerment: Implications for Theory and Practice		Originally published in the Canadian Journal of Mental Health: 12.1, Spring 1993, p 5-22
Empowerment: Self in Community		Presented to the Empowerment Practice in Social Work Conference; Faculty of Social Work; University of Toronto; Sept. 27, 1997
Empowerment and Mental Health in Community		This paper clarifies the concepts of empowerment and mental health and examines the relationships in a qualitative study of psychiatric consumer/survivors participating in three innovative community mental health programmes. Published in the Journal of Community & Applied Social Psychology 11: p125-142, 2001
Types of Advocacy		Presented at Brock University, May 2004
Beyond "Partnership Shock": Getting to 'Yes", Living with 'No'		Appeared in: Canadian Journal of Rehabilitation; Special Issue on Partnerships 12:2; Winter, 1998

New Paradigm Values / Principles / Approaches
*Pathways to Inclusion: Building a New Story with People and Communities*		This book is an examination of various perspectives on disability that provide insightful discussion on the current need for social innovation to move vulnerable citizens from areas of exclusion to social inclusion. It offers a straightforward approach to addressing the organizational strategies that have been used in the past and highlighting areas for change. The book can be purchased by linking here: http://www.captus.com/information/catalogue/book.asp?Book+Number=945 To order: Click on "Add to Shopping Cart" then click on "View Cart" to continue placing your order
*Fifty Years of Community Living*		This summary of John Lord's reflections was given at the closing plenary at the 50th Anniversary Conference of the Canadian Association for Community Living in Ottawa . November 2008
*Autonomous Family Groups*		This paper summarizes why the expansion of autonomous family groups and networks is a promising development. It also outlines how progressive service providers understand this change and are nurturing the development of autonomous family groups and networks. June 2007
Summary of Research on Disability in Canada: Toward Autonomy and Integration		This Summary of Research paper was prepared for and published in collaboration with the National Health Forum of Canada. It was published in Determinants of Health: Settings and Issues, Sainte Foy, Quebec: Editions Multi Mondes. Volume 3, 1998.
Building a Good Life		Ten lessons from promising initiatives across Canada that are providing a good life in community for vulnerable citizens...a summary of Research completed in 2004....(more in John's new book "Pathways to Inclusion: Building a New Story fwith People and Communities)
*Building a New Story Transforming Disability Supports and Policies Re-Visiting in Unison*		Written by John Lord, Charlotte Dingwall and Judith Snow this commentary takes the promises of In Unison and reflects on further learnings since 1998. Published Sept. 2005.
*Is That All There Is?*		This article which examines the issue of citizenship within services appeared in Canadian Journal of Community Mental Health, 19:2, 2000.
*Some Lessons from British Columbia that Provide Insight Into the Transformation of the Developmental Service Sector in Ontario*		This article reflecting on some lessons from British Columbia, where transformation is a few years ahead of Ontario was published in Adult Autism Issues in Waterloo-Wellington Newsletter No.29, Jan. 2005.
*Analysis of Change Within a Mental Health Organization: A Participatory Process*		This article appeared in the Psychiatric Rehabilitation Journal, 21:4, Spring, 1998. It documents the process of change of a mental health organization, using a case study that illustrates a shift in philosophy and practice based on the concepts of empowerment and community integration. Jointly prepared by: Centre for Research & Education in Human Services; Waterloo Regional Homes; and Wilfrid Laurier University
Shifting the Paradigm in Community Mental Health		This study examined changes in the values and practices within community mental health between 1984 and 1998 in the Kitchener-Waterloo area of Ontario, Canada. During this period, a distinct shift in policy coincided with a new emphasis on mental health reform. This unique two and a half year study examined one community in depth by looking at the changes that occurred and their effects on individuals, organizations, and policy. For a review of the book, click here. The book can be purchased by linking here: (http://www.utppublishing.com/pubstore/merchant.ihtml?pid=7425&step=4)
Role of Consumer Driven Disability Organizations in the Non-Profit Sector		This study addresses disability policy and the future role of consumer driven organizations in the non-profit sector as it examines the role of such organizations in the shifting disability movement into the new social movement. Four national consumer organizations were examined throughout the course of the study: 1)Council of Canadians with Disabilities 2) Canadian Association for Independent Living Centres 3) National Network for Mental Health and 4) People First of Canada (PFC). Published 2004.
The Evolution of Community Supports: Sorting Out What Really Works!		Keynote Address to Community Living Ontario, 50th Anniversary Conference, Nov. 2003
Citizenship Based Policy Reform in Other Jurisdictions		Presentation made to Community Living Ontario, Sept. 2004

independent living movement: issues/research

*Impact: Changing the Way We View Disability		This is a story of resilience and possibilities, as people with disabilities take charge of their own lives and work with others to create positive change in their community. July 2010
Shared Values, Networks and Trust Among Canadian Consumer Driven Disability Organizations		This article was published in the Disability Studies Quarterly, Volume 28, No 1, Winter 2008
The Impact of Independent Living Resource Centres in Canada on People with Disabilities		This article was published in the Canadian Journal of Rehabilitation, 10:2, p. 99-112, 1997
Canadian Independent Living Centres: Impact on the Community		This article was published in the International Journal of Rehabilitation Research, 23 (2), p. 61-74, 2000
Voice, Choice and Community		Remarks made at the Opening of new Gage Transition for Independent Living, Oct. 1996

Relationships and Social Networks
Friends & Inclusion: Five Approaches to Building Relationships		It's about relationships! In this book, Peggy Hutchison, John Lord & Karen Lord describe their personal search and exploration of five approaches to building the good life that Karen enjoys, released November 2010.
Social Networks: Facilitators Expand Capacity through Relationships		An excerpt from *"Pathways to Inclusion: Building a New Story with People and Communities", a book by John Lord and Peggy Hutchison, to be published in the spring of 2007*.
Relationships as a Mirror and Basis for Support		This article was published in Mental Health Matters, Vol. 14, No.2; Dec. 2001; reflecting on the meaning and value of relationships in our lives.
*Constructing Social Support With Vulnerable Citizens: Promise and Problems*		This summary was part of presentation made in Holland in 1999; discussing building support networks in a way that expands relationships and promotes a sense of community.

Person-directed Planning, Support and Individualized Funding
Independent Facilitation in Ontario: Governance and Structure Issues		This presentation was made to the Independent Planning and Facilitation Symposium, Guelph, Dec. 2, 2008
Individualized Funding in Ontario: Report of a Provincial Study		This article appeared in the Journal on Developmental Disabilities Communicator, Volume 14, No.2, 2008
*Moving Toward Citizenship: A Study of Individualized Funding in Ontario*		This is a comprehensive study of how four projects across Ontario are providing supports to people with disabilities in a unique and personalized fashion. This research study was commissioned by The Individualized Funding Coalition for Ontario and submitted by the Coalition to the Ministry of Community and Social Services on April 7, 2006.
Creative Supports that Work
Self-Determination and Community: Building a Textured Life Story		This article appeared in The Communicator, Jan. 2001, by the Autism National Committee. The story of Andrew Bloomfield's life in community.
Round Table Report on Individualized Funding		The purpose of the Round Table, chaired by John, was to develop province-wide principles, a policy framework, and directions for Individualized Funding, and to identify strategies for implementation. This report was published in May 2000.
More Choice and Control for People with Disabilities		The goal of this Review of Individualized Funding, published by the Ontario Federation for Cerebral Palsy, July 2000, was to develop understanding, awareness, and strategies for building the capacity of individuals, families, communities, and government to implement Individualized Funding for people with disabilities in Ontario.
Individualized Support and Funding: Building Blocks for Capacity Building and Inclusion		This article was published in Disability & Society, Vol. 18, No. 1, p71-86, 2003; reporting on findings and themes from a Canadian study that investigated Individualized Funding projects from different parts of the world. Please note: This UK publication uses British spelling on words such as individualised.
Lifestyle Planning		Steps for facilitators, individuals, families and network planning groups; Fall, 2003
Developments in Direct Payments		John Lord, Peggy Hutchison, and Brian Salisbury have a chapter in a New British booked called Direct Payments which is currently available for sale at: https://www.policypress.org.uk/catalog/product_info.php?cPath=10069&products_id=905
Individualized Support and Funding--Building Capacity of Individuals and Families		This article explaining how Individualized Supports and Funding help to build capacity of individuals, families and communities was published by the Individualized Funding Coalition for Ontario, Feb. 2001.
*Understanding Individualized Support: The Power of Independent Planning and Facilitation*		This article explaining the benefits of individualized supports and the role of independent planning and facilitation in developing those supports was published by the Individualized Funding Coalition for Ontario, Sept. 2003.
Quality Assurance		Ensuring quality requires a multifaceted approach. The development of this initial framework for quality assurance begins with these four assumptions supported by research and everyday practice: 1. Vulnerable people often feel powerless. 2. People with disabilities are often isolated. 3. Each person has his/her own unique strengths and needs. 4. Enhancing quality is more about the personal values and principles. Therefore anything that can be done to empower the individual, provide for optimum participation in community according to the individual's strengths and needs, based on values and principles will increase the quality of life for vulnerable people. Mar. 2005

Other Related Areas (SOCIAL INNOVATION, evaluation, homes, etc.)
"Networks for Change: Nurturing leadership & Collaboration"		Keynote address made at the Waterloo Wellington Mental Health & Addictions Network Launch, May 5, 2009
"Celebrating, Learning, and Inspiring Action" a Social Innovation Report		Summary Report of the Forum on Research-Inspired Social Innovation and Community Change in Waterloo Region, sponsored by the Centre for Community Based Research and its partners, Social Innovation Generation/University of Waterloo and the Region of Waterloo, December 2008
"Nothing About Me, Without Me": Participatory Action Research with Self Help/Mutual Aid Organizations for Psychiatric Consumer/Survivors		Participatory action research with self-help/mutual aid organizations for psychiatric consumer/survivors is reviewed. This research was published in the American Journal of Community Psychology, Vol. 26, No. 6, 1998
The Role of Community, Civic Society and Community Development: Implications for CLBC		Report prepared with Brian Salisbury for the Interim Authority For Community Living British Columbia, Mar. 15, 2006. (coming soon.....watch for this report)
*Time To Do It Right: Re-thinking How We Close Institutions*		Commentary published on Community Living Leaders, Nov. 1, 2004.
Closing Institutions: Myths and Realities		PDF of Power Point Presentation made at "Freedom, Reconciliation, and Community Living for All; A Forum on Deinstitutionalization", in Saskatoon, Saskatchewan May 3, 2007.
Creating a Home		Power Point Presentation made to Common Threads; National Conference of the Canadian Down Syndrome Society, May 14, 2005 --Four Key Things Enabling Families to Create Homes: Intention & Understanding; Strong Support Network/Circle; Independent Facilitation & Planning; Flexible or Individualized Funding.

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Person-directed Planning, Support and Individualized Funding
Independent Facilitation in Ontario: Governance and Structure Issues new		This presentation was made to the Independent Planning and Facilitation Symposium, Guelph, Dec. 2, 2008
Individualized Funding in Ontario: Report of a Provincial Study		This article appeared in the Journal on Developmental Disabilities Communicator, Volume 14, No.2, 2008
*Moving Toward Citizenship: A Study of Individualized Funding in Ontario*		This is a comprehensive study of how four projects across Ontario are providing supports to people with disabilities in a unique and personalized fashion. This research study was commissioned by The Individualized Funding Coalition for Ontario and submitted by the Coalition to the Ministry of Community and Social Services on April 7, 2006.
Creative Supports that Work
Self-Determination and Community: Building a Textured Life Story		This article appeared in The Communicator, Jan. 2001, by the Autism National Committee. The story of Andrew Bloomfield's life in community.
Round Table Report on Individualized Funding		The purpose of the Round Table, chaired by John, was to develop province-wide principles, a policy framework, and directions for Individualized Funding, and to identify strategies for implementation. This report was published in May 2000.
More Choice and Control for People with Disabilities		The goal of this Review of Individualized Funding, published by the Ontario Federation for Cerebral Palsy, July 2000, was to develop understanding, awareness, and strategies for building the capacity of individuals, families, communities, and government to implement Individualized Funding for people with disabilities in Ontario.
Individualized Support and Funding: Building Blocks for Capacity Building and Inclusion		This article was published in Disability & Society, Vol. 18, No. 1, p71-86, 2003; reporting on findings and themes from a Canadian study that investigated Individualized Funding projects from different parts of the world. Please note: This UK publication uses British spelling on words such as individualised.
Lifestyle Planning		Steps for facilitators, individuals, families and network planning groups; Fall, 2003
Developments in Direct Payments		John Lord, Peggy Hutchison, and Brian Salisbury have a chapter in a New British booked called Direct Payments which is currently available for sale at: https://www.policypress.org.uk/catalog/product_info.php?cPath=10069&products_id=905
Individualized Support and Funding--Building Capacity of Individuals and Families		This article explaining how Individualized Supports and Funding help to build capacity of individuals, families and communities was published by the Individualized Funding Coalition for Ontario, Feb. 2001.
*Understanding Individualized Support: The Power of Independent Planning and Facilitation*		This article explaining the benefits of individualized supports and the role of independent planning and facilitation in developing those supports was published by the Individualized Funding Coalition for Ontario, Sept. 2003.
Quality Assurance		Ensuring quality requires a multifaceted approach. The development of this initial framework for quality assurance begins with these four assumptions supported by research and everyday practice: 1. Vulnerable people often feel powerless. 2. People with disabilities are often isolated. 3. Each person has his/her own unique strengths and needs. 4. Enhancing quality is more about the personal values and principles. Therefore anything that can be done to empower the individual, provide for optimum participation in community according to the individual's strengths and needs, based on values and principles will increase the quality of life for vulnerable people. Mar. 2005

Other Related Areas (SOCIAL INNOVATION, evaluation, homes, etc.)
"Networks for Change: Nurturing leadership & Collaboration"		Keynote address made at the Waterloo Wellington Mental Health & Addictions Network Launch, May 5, 2009
"Celebrating, Learning, and Inspiring Action" a Social Innovation Report		Summary Report of the Forum on Research-Inspired Social Innovation and Community Change in Waterloo Region, sponsored by the Centre for Community Based Research and its partners, Social Innovation Generation/University of Waterloo and the Region of Waterloo, December 2008
"Nothing About Me, Without Me": Participatory Action Research with Self Help/Mutual Aid Organizations for Psychiatric Consumer/Survivors		Participatory action research with self-help/mutual aid organizations for psychiatric consumer/survivors is reviewed. This research was published in the American Journal of Community Psychology, Vol. 26, No. 6, 1998
The Role of Community, Civic Society and Community Development: Implications for CLBC		Report prepared with Brian Salisbury for the Interim Authority For Community Living British Columbia, Mar. 15, 2006. (coming soon.....watch for this report)
*Time To Do It Right: Re-thinking How We Close Institutions*		Commentary published on Community Living Leaders, Nov. 1, 2004.
Closing Institutions: Myths and Realities		PDF of Power Point Presentation made at "Freedom, Reconciliation, and Community Living for All; A Forum on Deinstitutionalization", in Saskatoon, Saskatchewan May 3, 2007.
Creating a Home		Power Point Presentation made to Common Threads; National Conference of the Canadian Down Syndrome Society, May 14, 2005 --Four Key Things Enabling Families to Create Homes: Intention & Understanding; Strong Support Network/Circle; Independent Facilitation & Planning; Flexible or Individualized Funding.

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